This information is useful for patients and family members as well.
The power of positive thinking should not be underestimated for anyone, but especially for those with ALS. The benefits include creating a buffer against depression, improve coping with stress, improve immunity, resilience, and overall health. It has found that a sense of optimism increases life span, lowers rates of depression and distress, and produces improved coping skills in times of hardship and uncertainty. For all these reasons and more, developing an optimistic perspective for ALS patients and other diseases, caregivers, family, friends and loved ones is important. Fortunately, there are many ways a positive attitude can be developed.
It has been suggested that maintaining a sense of humor, pursuing exercise, following a healthy diet and being surrounded by supportive people can promote a more positive attitude. Pursuing meaningful, enjoyable activities that provide satisfaction also help. Maintaining faith and connection, whether it is with a religious institution or a network of family and friends, can be a great source of mental healing which in turn can affect physical well being.
Mindfulness and relaxation can help identify the fine line that exists between a sense of hopefulness that research will provide answers that life still offers opportunities within the reality that ALS is a challenging disease. Yoga is a mind-body practice that combines stretching exercises, controlled breathing, and relaxation that reduces stress, lowers blood pressure, improves heart function and increases serotonin levels. Massage also reduces stress, pain and muscle tension. Support from a mental health professional is an excellent way to initiate a more positive life view.
The same is true for clinical trial opportunities. Some patients seeking to participate in a clinical trial reject those that use a placebo control group because of the negativity applied to the word placebo which actualy means, ‘I shall please.’ But current research on the placebo effect focuses on the positive relationship between mind, body and spirit. One common theory is that the placebo effect is due to a person’s expectations. If a person expects a pill or a treatment to do something, then it’s possible that the body’s own chemistry can cause positive effects. Therefore, if a person expects to feel better, chances are that will happen.
A strong interpersonal network that prevents isolation from what occurs can also deliver positive results. ALS patients sometimes feel the need to protect loved ones from the effects of the disease or feel too embarrassed by their disability to be in public. Those who continue to do the things they enjoyed before their diagnosis live longer and healthier life. A core network can be made up of family, friends or an organized community willing and able to provide support.
Further, there can be a very positive “placebo effect” from the many opportunities that already exist in our lives, bringing mind, body and spirit together in a constructive manner. Live life as fully as possible. Invite friends over for the evening. Take the trip you planned. Go out for dinner, or to see a movie, or get tickets to the theater. Participate in family events. Enjoy dining in a restaurant. Take a 1-2 day vacation at a local hotel. Visit your child’s or grandchild’s school on a un full day. Go to the park, Enjoy the beach and the sunshine. Ask your friends and family to help make these events happen. Not only you will feel an improved sense of wellbeing and quality of life, but those around you will benefit as well.